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Huntington's Disease Caregiving

Index
Home
Index
What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Cargiver~Knowledge
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing/Diet
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Symptoms
Legal Issues
Disability Issues
At Home Care
Outside Care
Caregiver Tips
Caregiver Support
HD Facts
Helpful Forms-Download
Personal Articles/Stories
Miller Messages
HD Links
Fix It-R-Us?
How-To Tips
Have An HD Question?
Beautiful Memories
Caregiver's Chat Room
HD Caregiver Newsletter
Daily Humor & Health News
Dreams & Signs (Fun Stuff)
Share A Link
Send An HD Greeting Card
Location Map
Blank page
INDEX
Caregiving
A place where caregivers can schedule regular chat sessions or ask someone else to meet and chat on line.
Article describing typical caregiver role as anyone who provides any type of physical and/or emotional care for an ill or disabled loved one at home.
Article discussing the 15 to 25 years of caregiving for a loved one with HD.
The Caregiver's Bill of Rights may help remind you of some things you may have forgotten to do for yourself
When one partner in a marriage becomes ill, the relationship between the couple changes. Knowing what to expect can help ease that change and make it less traumatic.
Information addressing caregiver issues and resources will be linked here in the near future.
A section where you can post information about things you've learned to help other caregivers.
Articles to help your loved one and you understand what they are going through.
Forms you can download or print out on HD Awareness, At Home Help, Assessments of Daily Living, Appointments, Medical, Medications, Assisted Living, Nursing Homes, Social Security, Estate Planning and End of Life issues.
Brief article explaining how everything you read about HD should not be applied to the person you are caring for.
 
HD
In depth article about the disease written the National Institute of Health.
Several articles on HD of interest to caregivers.
Links to information on HD from HDAC and other sources.  Other FAQS sheets on HD will be added here later.
Direct link to every known available handbook or guidebook written for families living with Huntington's Disease on the internet.
An autoresponder Question form to submit any question you have about caring for someone with HD.
Information you should be prepared for in case a trip to the Emergency Room is required.  Includes links to all Patient Bills of Rights.
Information addressing personality issues and changes in HD will be linked here in the near future.
Information addressing the various symptoms of HD will be linked here in the near future.
 
Stages of HD
Compilation of all known information in on this category in the "stages" of HD. 
Compilation of all known information in on this category in the "stages" of HD. 
Compilation of all known information in on this category in the "stages" of HD. 
Compilation of all known information in on this category in the "stages" of HD. 
Diet & Nutrition
 
Feeding Tubes
 
End of Life
Very sensitive article discussing ways to maintain comfort, dignity and respect during the late stages of the disease.
 
Miscellaneous
Information and resources.
A photo album, to add photographs of your loved one(s) with Huntington's Disease.
A Bravenet feature of a daily cartoon and news headlines.
Fun stuff!  Check out your daily horoscope or see what your dream least night really meant
Unfortunately a lot of caregivers are left with the responsibility to fix things around the house, on cars, etc.  These articles hopefully will show you how.
Handyperson tips, Home Health Remedies and other goodies to help you.
Information addressing legal issues in HD care will be linked here in the near future.
Location Map-moved to another website
Several messages written by Jean Miller during the time she was caring for her daughter Kelly. Articles can be downloaded or printed out.
Information addressing care outside the home available and/or necessary in HD care will be linked here in the near future.
Articles written either by Caregivers or Persons With HD about caregivers which may help someone else in their caregiving.  If you have an article or story that would help others, please submit it.  Articles can be downloaded or printed out.
Direct link to categories of free greeting cards with message Help CURE HD on each one.
Know of a good Caregiving resource or link?  You can post it here to share with others.